Happy New Year 2011!

Nope, mata anda tak salah melihat. Memang gambar menunjukkan tahun 1971. Bukan Syahr El nak ke belakang tapi sebagai ingatan kepada poster tahun baru Superman vintage tahun tersebut. Hakcipta kepunyaan dialbforblog

Sempena tahun baru 2011 ini, Syahr El mendoakan agar kita semua terus maju sebagai sebuah negara, komuniti dan individu. Harapan Syahr El agar rakyat Malaysia akan meningkatkan kesedaran mereka terhadap keperluan di kalangan komuniti OKU terutamanya soal accessibility dan juga ruang parkir yang selalu diambil oleh orang-orang bukan golongan OKU. Semoga Tuhan memberikan mereka ini yang mencabuli hak golongan OKU perasaan malu untuk menggunakan sesuatu yang bukan hak mereka.

Amin.

International Day of Disabled People 2010

This entry is republished from PETERTAN.com

Every December 3, we observe the International Day of Disabled People (IDDP). The theme for IDDP 2010, as promulgated by United Nations Enable, is “Keeping the promise: Mainstreaming disability in the Millennium Development Goals towards 2015 and beyond.” The website also suggested how this day may be observed, namely:

Include: Observance of the Day provides opportunities for participation by all stakeholders – Governments, UN system organizations, civil society and organizations of persons with disabilities – to focus on issues related to the inclusion of persons with disabilities in the MDGs.  

Organize: Hold forums, public discussions and information campaigns in support of the Day focusing on disability issues and development, finding innovative ways and means by which persons with disabilities and their families can be further integrated into the development agenda.

Celebrate: Plan and organize performances everywhere to showcase – and celebrate – the contributions by persons with disabilities to the communities in which they live as agents of development and change. 

Take Action: A major focus of the Day is practical action to mainstream disability in all aspects of development, as well as to further their participation in social life and development on the basis of equality. Take action to highlight progress and obstacles in implementing disability-sensitive policies, as well as promote public awareness of the contributions by persons with disabilities to the development of their communities.

I see no joy in celebrating this day dedicated to disabled people. The only reason I am writing this is to put on record my disappointment at how, despite promises and assurances by top politicians, people in high government positions, people who can effect change from both sides of the political divide, barriers that have been preventing full participation by disabled people have not been eradicated.

True, new public infrastructure have accessible facilities, but these, like I have pointed out in the “Circle of Mobility for Disabled People” are islands in an ocean of barriers. There is simply no convenient connectivity from one point to another, even in Kuala Lumpur, the capital of Malaysia. What more can disabled people living in the other cities and towns throughout the country expect?

As far as I can see, nothing much has changed from 26 years ago. Nothing much has changed since the gazetting of the By-Law 34A of the Uniform Building By-Law in the mid 1990s that specifically requires buildings to be accessible to disabled people. What has changed since the Persons with Disabilities Act came into force in 2008? And what has changed since International Day of Disabled People 2009? The concluding paragraph of last year’s entry is food for thought.

Talk is cheap. I have heard ministers, wives of ministers and government officials talk about making life easier for disabled people. Many of these “positive announcements” are archived in this blog. As far as I am concerned, nothing has changed. 1Malaysia kah or Rakyat Didahulukan kah, disabled people are still marginalised in every way through ommission, ignorance and discrimination. The people in government should stop talking and start working towards achieving equalisation of opportunities for disabled people. Just resolve our issues. It is as simple as that. We do not need the government spending money celebrating this day but not doing anything afterwards. No thank you!

Berlari!

Acah aje. Belum boleh berlari lagi tapi alhamdulillah progress belajar berjalan adalah positif. Bila sudah lama tidak berjalan mulalah cepat berasa mengah. Tambahan pula badab dah semakin berat akibat terlalu berselera makan dan makan pula sedap-sedap belaka. InsyaAllah dengan izinNya Syahr El akan dapat berjalan semula seperti sediakala. Ianya memakan masa tapi diri ini boleh bersabar sebagaimana sabarnya menempuhi berbagai rintangan, cubaan dan halangan. Amin.

"Selangkah Aku Meninggalkan Mu, Dua Langkah Cinta Ku Setia Pada Mu"

Ekekekek eksyen je tajuk tu... quoted from Puteri Gunung Ledang the Musical heheheh sentimental la kejap..

Alhamdulillah Syahr El hampir mencapai impian untuk berjalan kembali. Kaki palsu (tulen bang!) dah siap dan  kini Syahr El sedang menjalani latihan berjalan. Malangnya pembuat kaki palsu tu tak beri peluang untuk Syahr EL bawa pulang kaki tersebut buat masa ini kerana khuatir Syahr El tergolek-dog semasa di rumah.

Ye lah, dia pun dah dapat hidu yang Syahr El amat eager dan tak sabar orangnya. Kalau mahukan sesuatu, I'll definitely dash fo it - Supermanlah katakan. Hehehehe... Superman pun kene jugak berlatih kan,  karang tertonggeng macam peristiwa kat Menara Telkom dulu baru padan muka tak boleh bangun. Ala... dulu masa baru-baru guna kaki palsu lama sebelah kanan (masa tu kaki kiri tulen masih ada lagi) sekali tersadung dan tersungkur, memang ala-ala Supeman tengah terbang. Masa tu pulak kat lobby Menara Telakom kat Jalan Pantai tu tengah ada pameran jualan apa entah, punyalah ramai orang. Tapi Syahr El buat muka selamba, terima kasih kepada seorang kakak yang beri pinjam stool untuk Syahr El berpaut bangun dan terima kasih pada seorang rakan sepejabat yang membantu Syahr El bangun)

Menggunakan dua kaki palsu ni memang amat berbeza dengan masa Syahr El menggunakan sebelah sahaja dulu. Sekurang-kurangnya bila hanya sebelah kaki palsu dan sebelah kaki tulen, Syahr El masih dapat merasa bumi yang dipijak. Dengan dua kaki palsu, Syahr El seperti terawang-awang diudara, tak rasa bumi yang dipijak. Memang menggerikan.

Harapan Syahr El agar Allah mengizinkan Syahr El berjalan seperti biasa tanpa perlu bantuan tongkat mahupun walker. Amin. Superman can definitely do it!

Terima kasih kepada SOCSO yang telah sponsor kaki palsu ini for life, maknanya kalau ada apa-apa masalah atau perlu diganti Syahr El tak perlu bimbang soal kewangan. Rugi betul tak minta bantuan SOCSO masa nak beli kaki palsu kanan dulu... mahalnya boleh dapat 2 bijik motosikal kapcai. Tu baru sebelah kaki saja tu dan kalau rosak ke, perlu maintenance ke, kene ganti sendiri, duit sendiri.

Terima kasih juga pada Radhee dan Anwar dari Warisan Jasamedik yang banyak membantu (dorang ni la company yang buat kaki ni - very firendly and very helpful)

Dan teramat terima kasih pada Amir yang sentiasa memberikan semangat dan galakan pada Syahr El untuk meneruskan hidup yang banyak cabaran ini. Terima kasih Amir untuk waktu yang diluangkan setiap kali menghantar Syahr El ke sesi latihan fisioterapi, membantu semasa Syahr El eksesais di rumah dan juga menghantar dan mengambil Syahr El ke dan dari sesi dialysis. Hanya Allah yang mampu membalas segala budi Amir. Amin. InsyaAllah

Agung Kene Tipu?

Agaknya rakyat jelata ni ingt Agung tu bodoh ke? Atau mungkin senang sangat Agung kita bulat-bulat kene tipu oleh rakyat (atau sgelintir rakyat jelatanya?) Syahr El bercakap tentang acara-acara yang dihadiri Tuanku. Semuanya tampak indah dan perfect. Semuanya cukup padahal semuanya palsu, lakonan dan sekadar tunjuk2 belaka.

Bukan niat Syahr El untuk menjatuhkan sesiapa atau mana-mana pihak. Syahr El amat sayangkan pemerintah kita sekarang ni, mereka banyak berjasa selama 53 tahun kita merdeka tapi apa yang Syahr El ingin paparkan adalah luahan  hati dari seorang OKU yang banyak tertindas dinegar sendiri. Contohnya bangunan-bangunan yang tidak mesra OKU dan sebagainya. Hari ini Syahr El nak sentuk teentang PARKIR OKU sekali lagi. 

Hati Syahr El tengah panas sangat ni sebab sebagai seorang OKU.Ssyahr El rasa dipermainkan. Manakan tidak di Hospital Ampang tempat Syahr El cuci darah tiba-tiba ada banyak parking tambahan untuk OKU bila Syahr El datang untuk sesi dialysis pada minggu lalu. Di dialysis center pun banyaknya wheelchair berderet (masa Tuanku Permaisuri datang tempohari pun begitu) Punyalah Syahr El bersyukur prihatinnya pentadbiran hospital ni. Memang susah cari parking bila datang dialysis dan dengan adanya parking OKU tambahan di level 3 hospital ni mudah la bagi kami OKU yang memerlukan ruang untuk turun naik wheelchair.

Tengok-tengok lepas Tuanku Agung balik (perasmian hari selasa 9 November) Syahr El datang untuk dialysis hari Rabu 10 November PARKING OKU TAMBAHAN DAH TAKDA!!!

Sah la Agung kita dah kene tipu! Rakyat OKU DIBERI KRMUDAHAN. KONON!

"Ya Allah Ya Tuhanku, barangsiapa yang melakukan perkara keji ini bagaikan menindas orang2 OKU, Kau berikanlah merek petunjuk. Lebih baik lagi jika Kau berikanlah mereka peluang menjadi OKU agar mereka tahu betapa tertindasnya kami. Amin Ya Rabbal Alamin"

Sent from my iPhone
Photos taken from Dato' Sri Liow Tiong Lai's Blog

My first outing with the SONY a55

Semalam Syahr El pergi ke Putrajaya untuk belajar guna the new DSLR SONY a55 yang beli tempoh hari. Teringin nak ke bird park or butterfly park kat Tasik Perdana tu tapi Amir kata susah nak access guna wheelchair. So niat tu kene la tangguh hingga Syahr El dapat prosthesis nanti. InsyaAllah. 

Sampai kat Putrajaya semalam Syahr El kesian pulak kat Amir nak kene sorong wheelchair untuk Syahr El ambil gambar. So Syahr El decided ambil gambar dari dalam kereta. Rasa kecewa juga tapi tak mengapalah, at least dapat juga belajar ambil gambar dari Amir walaupun dari dalam kereta. Boleh tahan juga lah gambar yang diambil. (Heheheh terpuji diri sendiri pulak, masuk bakul angkat sendiri)

InsyaAllah nanti lain kali boleh ambil gambar lagi. Selasa depan pun kami nak ke Lookout Point kat Ampang-Hulu Lamgat tu. Mesti cantik view sunset Metropolitan Kuala Lumpur. Amir ada ambil gambar di sana sebelum ni. Memang cantik. Tapi Syahr El tak boleh la nak lawan dia yang professional photographer tu but I'm sure i'll be at that level one day, with or without the limitations that I have. Ahahah pegang cameria lama-lama pun tak larat tangan cepat kebas. Tangan kanan Syahr El memang tak kuat, physiotherapist pun cakap macam tu. ini disebabkan stroke yang Syahr El kena bulan Februari lalu.

 Ok tengoklah sample gambar-gambar yang Syahr El ambil semalam ya.

A Treat for MYSELF

Hah dah seminggu ni KalEl asik shopping aja. Bolehkatakan hari-hari la ada saja yang dibeli. Kal El kemaruk shopping ni kerana kebosanan agaknya. Bila dapat jalan-jalan dan beli itu ini rasa seronok walaupun boleh dikatakan perilaku ni boros dan membazir. Takpalah sekali sekala nak menggembirakan hati.

Hari ini Kal El ke Parkson di KLCC membeli minyak wangi. Cuba berbagai jenama dan bau-bauan tapi sangkut plak kat Feragamo Black ni. Ada gak Bvulgari yang amat menarik bauan musky woodnya tapi hehehe satu-satu dululah Kal El ya. Ikut hati mati, semuanya pun nak beli.

Sebelum tu Kal El ke Hospital Ampang untuk renal appointment. Dua hari lepas ke tempat sama untuk eye appointment dan semalam pula juga di Hospital Ampang untuk ortho appointment.

Alhamdulillah mata Kal El ok cuma kene pakai reading glasses (yup mcm orang tua), ortho wise kene pi rehab aka physio pada 27 Oktober.Rena pun ok tapi kene buat blood transfusion sebanyak 4 pint masa dialysis nanti sebab hemoglobin agak rendah.

Alhamdulillah semuanya stabil sebab tu lah Kal El happy and treated myself to a bottle of perfume today (alasan!)

Parking OKU

Bercakap pasal OKU parking ni kadang-kadang Kal El free aja dapat dosa. Mana tidaknya menyumpah orang-orang bukan OKU yang pemalas dan mengambil jalan mudah meletak kenderaan di petak yang di khaskan untuk golongan kurang upaya. Agaknya mereka ini dah kemaruk teringin sangat nak cacat kot?

Oleh kerana golongan yang mementingkan diri sendiri ni, golongan yang dah sememangnya underprivileged seperti Kal El yang mendapat tetap susah. Tempat parking OKU ditutup untuk memgelakkan bukan OKU meletakkan kenderaan mereka di sana. Jadi bila si OKU yang sebenarnya datang, terpaksa la call security yang phonenya kadangkala tak berjawab, jadi terpaksa berpusing satu bangunan mencari kalau-kalau terjumpa security guard. Ataupun OKU terpaksa park tempat biasa. bukan tak boleh tapi seperti Kal El yang berkerusi roda ni, maunya nak muat celah-celah kenderaan lebih-lebih lagi kalau diletak rapat-rapat. Maunye tak calar kereta orang nanti.

Contohnya seperti semasa Kal El di Mines tengahari tadi sehingga terpaksa berpusing turun naik beberapa kali untuk mencari guard yang boleh membuka rantai penghadang yang dimangga. Ada dipapar nombor telefon sekuriti tetapi tidak berjawab. Mujurlah berjumpa tetapi masa dan minyak telah dibazirkan berpusing mencari guard tersebut.

Dah la kami ni kurang upaya disusahkan lagi dengan benda remeh-temeh begini hanya kerana segolongan manusia yang tidak bertamadun dan berhemah serta mementingkan diri sendiri. Ada ke patut? SO bagi yang terbaca entry ni dan anda bukan seorang OKU, jangan-janganlah ambil petak tempat kereta OKU kerana ingatlah, doa orang-orang teraniaya tu dimakbulkan Tuhan.

Luahan Hati Seorang Adik/Abang

Di pagi Ahad yang indah ni sesuai untuk Kal El melihat kembali tentang dua perkara; kasih sayang dan ahli keluarga. Dua perkara yang Kal El ada tapi bukan datang dari punca yang sama. Sad but true.

Siblings Love

Benarkah kasih sayang adik beradik itu lebih jitu daripada sayang kawan-kawan sehinggakan timbul peribahasa Air Kalau Dicincang Takkan Putus - itu hanya mungkin mengatakan tentang pertalian darah tapi bukan semestinya kasih sayang yang patut datang bersamanya.

Kal El tak menafikan kasih sayang ibu bapa, dan dalam kes Kal El seorang yang bukan ibu (makcik) tapi kasihnya pada Kal El lebih dari seorang yang melahirkan Kal El. Kasih sayang mereka dapat Kal El rasa dan mungkin itu yang pentingnya. Namun, di kala si Ibu telah kembali ke rahmatullah dan si Ayah sudah tua tidak berdaya dan si Makcik pula berkerusi roda, siapa lagi yang patut Kal El harapkan dikala Kal El memerlukan?

Sudah tentu pada adik beradik; Kakak dan Adik yang Kal El ada.


Ya, kami hanya bertiga tapi terlalu ketara sikap engkau-engkau, aku-aku dalam diri kami. Masing-masing dengan hal sendiri sampaikan Kal El merempat dalam hospital selama lebih 3 bulan ni tidak dihiraukan. Malah boleh kira dengan jari Kal El yang tak cukup satu ni berapa banyak kali mereka datang melawat Kal El di hospital, apatah lagi membantu menjaga Kal El?

Kal El kecewa, jika dahulu Kal El percaya dalam menempuh masalah, adik beradik dululah yang patut Kal El minta pertolongan dahulu tapi kini tidak lagi. Mereka bagai semakin jauh dengan sikap tidak kepedulian mereka. Agaknya mereka malu punya adik beradik cacat seperti Kal El, seorang Superman yang hanya Super di dalam hatinya tapi tidak secara fizikal. Mungkin sebab Kal El mungkin kehilangan pekerjaan dan bukan lagi lubuk untuk mereka meminjam wang (khas untuk kakak ku) atau mungkin mereka terlalu sibuk dengan kehidupan sendiri, kawan-kawan mereka, anak mereka, bekas suami mereka, atau apa saja angan-angan yang mereka ingin capai dalam hidup sehingga mengabaikan si cacat ini.

Kal El bukan terlalu mengharapkan kasih sayang mereka tapi hampa dengan sikap mereka, Si Adik tak pernah bertanya khabar dan kalau bukan untuk membawa si Makcik yang berkerusi roda melawat abangnya, hilang khabar berita entah hidup entah mati, Kal El pun tak tahu. SMS yang amat murah kosnya kini pun tak pernah berhantar bertanya khabar. Sesekali bila datang menjenguk bersama si Makcik berkerusi roda, mukanya masam mencuka seperti terpaksa. Hati mana yang tak sayu melihat adiknya begitu?

Si Kakak pula rajin bertanya khabar melalui SMS walau amat jarang sekali datang menjenguk tapi soalan yang ditanya amat menyakitkan hati seperti "Kau sihat?" 'Huh, kalau aku sihat aku dah balik rumah" jawabku dalam hati. Dan bila Kal El dirumah pun walaupun dia tinggal amat berdekatan amat jarang sekali menjenguk dan bertanya khabar. Alasannya Kal El tak beri dia kunci rumah. Hmmm buat apa nak beri kunci rumah pada semua orang? Tidak cukupkah si Ayah ada menyimpan satu set? Dan kalau menghubungi melalui SMS atau telefon pun pasti pada hujung-hujung bulan bila dia kesempitan wang.

Entahlah. Kal El dah tak sanggup nak fikirkan semua ini tapi ia amat mengganggu fikiran ini. Sampaikan bila sekali sekala yang amat jarang kala itu mereka datang menjenguk, Kal El dah tak pandai hendak berkomunikasi dengan mereka, malah rasa marah dan benci meluat-luat membuak dalam dada.


Kal El meluahkan hati disini dengan harapan kesedihan hati ini dapat dipujuk, bukan mengaibkan sesiapa dan bukan membemci sesiapa. Kasih sayang Kal El pada mereka masih utuh dan tak mungkin Air Yang Dicincang Akan Putus...

Alvin and The Chipmunks 2 n Chili's KLCC

It was an exciting night - yep, especially after not going to the movies for a very long while - our last was GI Joe for the department's outing - and that was a couple or maybe three or four months back. It looks like we have to postpone my plans for a cuti-cuti Malaysia for the time being for a couple of factors. One, we're saving or our Siem Reap trip end of January 2010 and two, it is the end of the year, most highways would be jammed packed and of course we wouldn't want to waste our time on the road. I guess those are a couple of valid reasons. Hmmm I'm actually planning a surprise Penang trip to Hard Rock Hotel for February next year. Menarik tuh!

Alvin and the Chipmunks

So because of the postponement of our domestic trip to February next year, I would've to settle and be happy with little treats like going to the movies. Jadik la....

The Chipmunks and The Chipettes (The Cartoon Series)

It was Alvin and the Chipmunks and of course like the first installment of my all time favorite cartoon series when I was a kid (the first movie was better and funnier, I think!) we both enjoyed and laughed out loud especially when the female chipmunks were introduced as 'The Chippets' - somehow it brings a dirty meaning to those who understand what Chipet means hehehehe. (If you don't know gofind out) - well, when we were kids our minds were not as corrupted to even think the group's name sounded dirty... ish...ish...ish...naughty us! Overall, the movie was fun- who wouldn't enjoy the cute voices of The Chipmunks and The Chippets?

To note that was the first time I went to the movies on a wheelchair. TGV (at least at KLCC) is OKU friendly as they had ramps to the movie houses and they have seats specially for OKUs.

The Chipmunks and The Chipettes (in Alvin and the Chipmunks 2)

Before the movies we had dinner at Chili's. Heheheheh mana lagi kalau tak kat situ kan bila dah ke KLCC. I had the Cajun Ribeye Steak and KN had what else, the Country Fried Chicken. For starters seperti biasa, menu wajib - Nachos but this time with added Fajita Beef - hmmmm Chili's menu seems to change quite frequently lately ni... kejap-kejap lain and honestly I miss some of their old line up.

Nachos with Fajita Beef (Top most), Country Fried Chicken and Cajun Ribeye Steak

It was a fun night and KN promised to take me out to watch Muallaf sometime soon! Can't wait lor...

p/s I purposely spell Chippets for the kick - the correct spelling is Chipettes.

Beli Keta Lagi...

Presenting my new ride! Tadaaaa! Sporty yellow macam bas sekolah. I call this my Ferrari. The old black one which i refer to as my Porche is for home use. So tak ler kotor tayar guna outdoor masuk pulak dalam rumah. Hmmm i love my new ride. Btw esok nak hantat Ms Livvy modify untuk OKU use. Nanti citer ler. Later!

Hemodialysis Treatment at Ampang Hospital

A rather pleasant news yesterday - syukur alhamdulillah. I am permanently accepted kat Hospital Ampang in Pandan Mewah for hemodialysis. Sebelum ni my status there was 'Transit Patient' atau dengan kata lain MENUMPANG. I am very happy and amat-amat bersyukur pada Allah. Kenapa? What's so special there?

One - it's a hospital. So apa-apa masalah (like sudden drop in blood pressure or Hb (Hemoglobin) level, dorang akan cepat bertiindak compared to other private, non-hospital dialysis centres. this isi because they do not have resident doctors. Nak amik darah pun result berhari-hari baru dapat. Ampang Hospital is a Blood specialist hospital, therefore any blood samples taken in the morning, the results will be out by afternoon the latest.

Kat Hospital Ampang (most of the part) memang macam dalam freezer so kene berbungkus ler macam Eskimo kejap heheheh... ni tengah dialysis la ni.

Two - It's considered near jugak la to Bukit Antarabangsa and it's between home and work. So KN can drop me off on dialysis days and later pick me up (or papa picks me up and send me home)

Three - It's a government hospital. So, with my OKU card from Jabatan Kebajikan Masyarakat, I am entitled to free treatment. Dah tak perlu susah-susah nak apply for socso or any other forms of help. Leceh and takes time. Even if I have to pay it is really cheap - RM13 for hemodialysis treatment - sapa nak kasi lah?

Four - The staff nurses, medical assistants and PPK staff there are very good in their jobs and friendly too. Memang macam satu keluarga yang besar, boleh gurau-gurau, gelak-gelak and they are very sincere in the things they do for patients. Kalau kat dialysis centres lain, from what I have experienced before, tak berapa closely knit.

Five (reason paling best!) - They serve food! Dah la free, dapat meals pulak tu masa tengah dialysis... kekadang mee hoon, nasi goreng, nasi lemak, sandwiches hehehehehe...

While I was waiting for my tankcoff insertion in January I did my dialysis kat Hospital Ampang jugak and now when I return 8 months later, the staff still remember me and they treat me well. Bukan senang nak diterima buat dialysis kat sini sebab waiting listnya amat panjang and they do tight screening and filtering to the well deserved people to be treated here. I am just very lucky because I am considered a CAPD failure case and such cases are transferred to this place for dialysis treatment. Alhamdulillah.

p/s I will be away this coming Monday onwards (hopefully for not very long) for my tankcoff removal surgery. Do pray for me. Thank you.

Left Foot Driving

Since I've decided not to go ahead with installing the handicapped accelerator and brakes on the steering wheel, here's how I've been driving Ms. Livvy -using the left foot while the prosthetic is
detached - it's like performing a stunt in a circus really but after getting used to it, kacang je la hehehe.

Kal El
Sent from my iPhone

An Inspiration

One lost his leg and the other lost her arm but they are still able to dance gracefully - what an inspiration for an OKU like me.. hmmm I wonder how he maintains that balance lah? Kene belajar menari ni!

I N.E.E.D

Right now, i really and badly need a HOBBY! I am just easily bored tapi tak tau nak buat apa. Ever since I lost my leg and have to go on dialysis 4 times a day I have become so malas tapi cepat betul bosan.

I need a hobby especially on weekends, something that could distract me from feeling lonely tapi Kal El tak nak a hobby that needs to use money - bukan kedekut tapi if a hobby takes up some portion from my income and later on stresses me up, I don't really call that a hobby. Lagipun I have better needs to use my money for medical supplies and what nots related to being sick - costly I tell you gaji juta-juta pun takkan cukup!

I wanna do something yang, well, not totally free and not too expensive either, suitable for a handicapped like me. Also suitable for someone who has to have a clean and sterile place for dialysis every five to six hourly. Hmmmm apa ek, oh yes, and something that does not confine me within these four walls that I call my home - cerewet tapi that's what I need right now - to go out!

Not that I hate being at home but I have stayed home too much lately and I want to see the world and enjoy my life like I used to. I miss those days when I was free to do and go wherever I want. Now that I have Ms. Livvy I think I am a step closer to being 'free' tapi do not know what I want to do exactly.

I wish that I can have my dearest on weekends but that is just impossible. I am not sure whether my dearest really spend time with the family or with friends or god knows who but it is impossible to get this love of my life to be here on weekends with me. Simply couldn't or refuse to, I just don't know. Worse still, lately my dearest returns home very late on Sundays - the more reason why I need to get out and enjoy myself, alone.

Movies? Maybe not. I have been watching too much movies and sitcoms ever since I got sick - imagine watching 4 - 5 movies every weekend? Boleh muntah lor sampai nak tulis review dalam ni pun dah tak lalu. Furthermore I rather go to the movies with my better half.

So, whoever is reading this and if you think you know me, or even if you do not personally know me, if you know what I like, maybe what I used to like doing (banyak dah hilang ingatan sekarang ni) please, suggest me a hobby. I thank you if you do. I really need a hobby real soon for my sanity.

Ms Livvy and Me

My Grand Livina arrived on Saturday sharp at noon - the delivery was superbly fast - very impressed with this Sales Assistant, David (the same guy who sold Roy his GL) - my loan was approved within a day and the delivery the week after!


I love the car, indeed love it so much - the fact that I now have two cars to maintain scares me though - but what the heck, one is for KN to use and this one, I need it to transport the PD solution from HKL and what's most important is so that I will be able to drive again! What's better is that both Mr. Kellu (My first car) and Ms. Livvy here share the same number - WKT 1048 and WST 1048!


Well, that's what I've done - I've driven for the first time in more than a year! Takutttt sangat especially when I have to drive using my left foot and while my right prosthethic is detached - susah nak drive with a feeling-less leg getting into the way. Tapi ok la boleh la slow2 heheh dah tak gang ho macam dulu la... kene la bersopan santun driving sekarang ni. So therefore, I have decided that I do not need the modification done after all... yey jimat RM3k!



This morning, Ms. Livvy telah menjalankan tugasnya yang pertama mengangkut kotak-kotak PD solution untuk dialysis Kal El. Sebanyak 24 kotak seberat 12.5 kilo sekotak telah diangkut dengan jayanya oleh Ms. Livvy heheheh. This will be her once a month routine.


Kal El: Hopes for the best - mampu bekerja dan bayo hutang ahahahah...

B.O.R.E.D

Yang sebenarnya Kal El lately ni sangat bosan. I am so bored that I find going to Giant exciting. Well, since I was amputated boleh kira berapa banyak kali Kal El pi jalan-jalan. Yeap I went to Kota Kinabalu in February and there's the once a month visit to Jusco for grocery shopping plus maybe an extra visit to (again) Jusco for JCard Day last month. Other than that - nil, zero, takde apa. Ok la to be fair, I went to The Gardens last week to get the Transformers ticket at Signatures and esok I'm going there again to watch the movie. Tapi tu je la.

On weekends Kal El tak pergi mana, terperap kat rumah sorang-sorang since KN as usual balik rumah parents dia and lately ni dia balik lambat sangat on Sundays. Kalau dulu-dulu petang dah balik by 3 or 4pm kadangkala tu pagi lagi dah sampai. Lately ni selagi tak gelap, tak malam dia takkan sampai rumah.

I am not complaining (hehehe abis tu apa ke namanya ni?) Kal El bersyukur I still go out to work and can enjoy the MRR2 scenery everytime, to and from work and once a while kalau ada meetings kat KLCC ke, I get tosee the scenery from office to KLCC and back. I just need to pour this out. Sometimes I feel sesak nafas having to stay indoors all the time. I haven't been driving and since the car currently is manual manouvre, I can forget about ever wanting to drive. I depend on others to take me around tapi there's just no one to do so.

My siblings dengan hidup diorang, well, I know they love me but I can't them and interrupt their lives just to take me out tapi apa salahnya once in a while do so with a brother? I know somehow KN pi jalan-jalan bila dia balik Shah Alam, without me. I don't blame KN at all. Mungkin dia rasa leceh bawa orang kurang upaya macam Kal El ni. Ye la, jalan lambat, susah nak panjat tangga, kene pimpin, cepat letih, and I have to stricly follow my dialysis schedule - every 5 hours otherwise I'll have to plan my outings (if ever there was going to be any lah). Atau mungkin dia malu punya seseorang seperti aku.

I cannot say much. KN has done alot for me lately. Kalau aku bising or complain I will sound macam tak kenang budi but I just want my life to be like it was before - I want to gout for weekly movies, pi karaoke, gastronomic outings. I am tired of having to stay home especially on weekends. When at home, I am confined to my bedroom, nak tengok astro pun tak lalu. I watch movies (kekadang 5 - 6 movies per weekend), TV series downloaded from the Internet and godeh-godeh Internet dengan laptop ni. I have plenty of office work but weekends? Please la, nak fikir pasal kerja pun malas on weekends.

Most of the time Kal El sedih. On Sundays I would be waiting and hoping KN would come back early and take me out sampaikan everytime I would end up going to bed early just to cover my frustration. But how can I tell KN what I want? Kesian kat dia pun...

I just wish things are not so much different than before my leg was amputated or before I am diagnosed with renal failure. Sampaikan our trip to Makassar in April pun KN cancelled. Aku turutkan aja sebab afterall, KN yang akan jaga Kal El kat sana nanti. Takpe lah, burn saja tiket tu, what's done cannot be undone and Air Asia pun takkan bagi refund. Let it be.

Right now I will say yes walau ke mana pun orang ajak aku pergi. I just want the opportunity to go out to see the world. I have lost so much in life and this shouldn't be one of it. I work hard to be able to enjoy what I earn. It's frustrating, dissapointing that the fruits of my labor cannot be tasted but instead habis bayar loan and what nots.

I'm sorry for writing like this but I just need to get it out my system. There's no flow to what I wrote, theres no coherence even.

I am trapped, I am jailed inside my own home.

One Step Closer...

Yep one step closer to owning a Livina - pagi tadi test drive (Kal El tak test drive sebab tak berani lagi). Semalam dah pi buat license and guess what buang masa je Kal El tunggu kad OKU ingat ada beza lesen memandu OKU ni tapi macam sama je...

So back to the car, the SA (sales assistant) came to our condo at 10:30am, discussed a few things and paid the booking fee - blom deposit lagi just booking fee and submitted the necessary documents. Lepas tu KN test drive.. aku duk belakang je hehehe...

So we decided to take the 1.8A variant and hmmm we chose white, tak jadi plak amik kaler orange as I earlier planned - macho sket with the additinal aero kit and leather seats kan? Hahahah! So, it;'s going to be a White Grand Livina 1.8 Automatic transmissin with leather seats and Impul bodykit (tak amik Impul tuned, bukan nak buat racing pun hehehe... and the Impul bodykit pun beza 10k! Baik Kal El beli sofa baru puas hati!

InsyaAllah macam ni ler gamaknye ropanya...

The loan insyaallah will be processed next week and the car should be out soon after that tapi too bad Kal El belum boleh drive sebab kene submit medical report and photographs to JPJ and what not kat Putrajaya for their modification approval. Lepas approval (which according to the SA would take about 2 months - sigh, kerajaan! - baru la Tan Chong boleh modify (crap sangat dapat keta baru tapi tak bleh drive... naik jadik co-pilot je la nampaknya...)

The modification that will take place - accelerator ngan brake dekat steering - cool! Macam F1 car plak gamaknya hehehe....

Tak sabar nak start driving balik, dah setahun tak driving langsung...

My New Super Leg!

Huhuhu opps ni bukan an erected nipple ek...

Alhamdulillah, it has been over a month since Kal El pakai prosthetic ni... and syukur pada Allah He has given me the chance to walk again dan proses Kal El sembuh dan belajar berjalan begitu singkat dan mudah.

Ahahah Macam Rupa Sinki pun ada gak...
Pandangan dari atas, kat sini la Kal El masukkan kaki

My Bionic Leg (as I like to call it) costs me RM7.5k and it was worth the money spent - this prosthethic memang senang nak guna - even the people at the kedai (Lee @ Taman Midah Cheras) pun very helpful and friendly. Kal El dapat kaki ni pun cepat @ dalam masa 2 minggu selepas ukur.


Since about a week after dapat kaki ni Kal El mula kerja di tempat baru, I refused to use cruthes to walk so like it or not I had to learn to walk fast - memang betul, I only had to use crutches to the new office for a couple of days and wallah lepas tu I wa swalking using my two feet again.

It does feel funny walking with an artificial leg and of course Kal El sekarang ni limping lah but the most important thing is I can walk and enjoy life again.

Ahaks... ada EJECT button lagi...

Again, Syukur Alhamdulillah Allah permudahkan segala urusan Kal El selama ini. Amin.

Kene put on the silicon socks dulu...

Filipino Market and Pasar Ikan Masin – Kota Kinabalu, Sabah

Ahahah how could I accidentally left this entry out? This is a continuation from our recent trip to Kota Kinabalu, Sabah.

a.k.a Pasar Filipino @ Filipino Market

The hotel we stayed in was very near to the Filipino Market, Pasar Buah and Pasar Ikan Masin. That Sunday before we returned to KL there was also a Tamu there. Unfortunately since I had to control my fluid intake due to this darn renal failure I had to refrain myself from gulping the young coconut drink that was in abundance in KK. I still remember the last time I was in there in 2003, that was the only drink I took in KK.

Gamat Kering dan Ikan Kering @ Pasar Ikan Masin

This part of KK hasn't changed much. Well of course there were new buildings as well as fly overs surrounding KK City but this part of town remains the same. Filipino Market is like Chatuchak in Bangkok but this time I couldn't enter the place as I was wheelchair bound and guess what - tak muat lah! So since it was KN's first time there, I gave KN the chance to jalan-jalan and tengok-tengok inside the Filipino Market while I sat outside on the wheelchair like a peminta sedekah ahahaha... This particular area in KK, especially on a Sunday memang penuh dengan orang, crowded habis. So imaginelah the attraction I've caused to these locals.

One thing about Malaysians, they do like to stare - pantang tengok orang pelik (Ye la takde kaki kan... pelik la) masing-masing tengok-tengok tanpa segan silu dan cover-cover - macam nampak alien ke nampak hantu pulak... lantak la hehehe (emotional kejap)

We had the chance to shop at Pasar Ikan Masin - Ka'ngah and Mak kirim terubuk Sarawak and we also bought Belacan Papar which our friend Zurry recommended saying sedap gila (lepas rasa macam sama je ngan belacan Semenanjung). We also bought tit bits to be given away to family members back home. Pasar Ikan Masin memang la a heaven for Ikan Masin lovers, providing you bring the extra cash as these things can be costly! As for me yang tak makan ikan ni, huhuhu I don't at all enjoy the smell of that place, buweeekk!

Pasar Buah and Tamu